Our Ambassadors are all affected – directly or indirectly – by a muscle-wasting condition and are here to provide support on independent living, providing advice to anyone affected directly or indirectly by a muscle-wasting condition. Whether you would like to speak to someone who really knows what it is like to live with a muscle-wasting condition, or you need advice about accessing the services, benefits or equipment you are entitled to, our Ambassadors can help.
“A lot of good things have come from the advice I was initially given from the Advocacy Ambassadors. I was able to claim Personal Independence Payments (PIP), which has led on to so many more benefits for me. Not only that though, it’s been great to connect with others living with muscle-wasting conditions. It makes you feel less isolated.” Emily Bonner, who has limb girdle muscular dystrophy
Here’s how you can get in touch with an Advocacy Ambassador: