Peer Support Volunteers who have a partner with a muscle-wasting condition

These peer support volunteers all have a partner who has been diagnosed with a muscle-wasting condition. Below is a list of volunteers who have this experience and are here to provide you with support and advice. We will be adding more volunteers to this page once they have completed their training.

For more information or to get in touch with someone please contact the information team.


About me: Following a career in teaching I am a school governor at a local special educational needs school which keeps me in touch with education. I love to go into school and spend time with the young people, many of whom face considerable challenges.

I enjoy reading and going to the theatre and particularly love to travel. I have been lucky enough to travel widely at home and abroad with both my late husband and a wide circle of friends.

Why I became a peer support volunteer: My husband Chris was diagnosed with Myotonic dystrophy in his late twenties so I feel I know something of the challenges faced by both those living with muscle wasting conditions themselves and those who share their lives. For me there were many times when a listening ear or sounding board was essential – I would hope to be able to offer that to others.

Top tip try not to let your condition stop you from doing what you want to do or being what you want to be.

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