Emily’s 21-day Yoga challenge
Emily Bonner has completed a 21-day yoga challenge on Zoom – which she accidentally got into after signing up her sister, who unlike Emily does not live with a muscular dystrophy condition. Here she describes the challenges and also how she has built her ability. Knowing she’d really enjoy it, I signed my sister up
A ‘virtual’ postcard from Milan
A new virtual travel experience, from Limitless Travel, invites anyone in the MDUK community to book hour-long interactive video sessions, hosted by expert guides. These Zoom calls give guests a travel opportunity through video and pictures. Whether it’s an hour strolling through Paris, excavating Pompeii ruins with an archaeologist or meditating with a Buddhist nun,
A ‘virtual’ postcard from Florence
A new virtual travel experience, from Limitless Travel, invites anyone in the MDUK community to book hour-long interactive video sessions, hosted by expert guides. These Zoom calls give guests a travel opportunity through video and pictures. Whether it’s an hour strolling through Paris, excavating Pompeii ruins with an archaeologist or meditating with a Buddhist nun, these
A ‘virtual’ postcard from Tokyo
A new virtual travel experience, from Limitless Travel, invites anyone in the MDUK community to book hour-long interactive video sessions, hosted by expert guides. These Zoom calls give guests a travel opportunity through video and pictures. Whether it’s an hour strolling through Paris, excavating Pompeii ruins with an archaeologist or meditating with a Buddhist nun, these
A ‘virtual’ postcard from Prague
Prague – not for the faint-hearted!
A ‘virtual’ postcard from Dublin
A new virtual travel experience, from Limitless Travel, invites anyone in the MDUK community to book hour-long interactive video sessions, hosted by expert guides. These Zoom calls give guests a travel opportunity through video and pictures. Whether it’s an hour strolling through Paris, excavating Pompeii ruins with an archaeologist or meditating with a Buddhist nun, these
A ‘virtual’ postcard from Pompeii
Dear fellow MDUK members, We are in Pompeii! I have been here before many years ago, but I had no idea that pre that massive eruption Vesuvius – (it erupted and covered Pompeii in AD 79!!) Versuvius was twice as high and had just one peak. Today I had a walk with archaeologist Roberto along the
A ‘virtual’ postcard from Athens
Dear fellow MDUK members Today we went on a street art tour of Athens with Thomas and Kalliopi to see the alternative side to the city. What can I say? I really, really enjoyed it! This is totally my thing. The picture in the postcard is by Ino, He’s a Greek visual artist, very active
Living with a muscle-wasting condition can be tough – but it’s definitely not boring
I’m Louise and I live in West Berkshire with my husband, Mark, and nine-year-old son, Jacob. We live in a house with a stair lift, a garden and enough space to be creative in – something I have never been more grateful for! Art is often a lifeline to me and has been especially so during
Lockdown: Chapter 3
I’m sure many of you who use PAs and carers are in similar circumstances to me right now, whereby all of a sudden, no matter how good your normal support structure is, you are back to relying on family and close friends for essential daily support. Up until recently I had great freedom with really
News
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Trailblazers network moves to Whizz-Kidz
Trailblazers network moves over to charity Whizz-Kidz
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Mum calls for more awareness of CMT disease
Danielle Malkin and sons Theo and Jenson all have the condition
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Update on PolarisDMD clinical trial
Update on PolarisDMD clinical trial
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Parents to run memorial Town and Gown
Jamie Pammenter had Duchenne muscular dystrophy and died in 2018
Events calendar
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27
Skydive for MDUK 2021
27 February 2021
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6
Snowdonia Velocity Zip Slide for Georges Journey
6 March 2021
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20
Spring Ball
20 March 2021
Near you
