Celebrating five very good friends in support of MDUK’s BBC R4 Appeal
Muscular Dystrophy UK has an appeal coming up on Sunday 25 April with BBC Radio 4. The theme is #MyMate. To support this I’d like to mention five good friends who I have either met because of my having muscular dystrophy or who have supported me through this journey. I’ve met some amazing friends over the
Kelly’s blog tells how her wonderful staff took care of the business while they looked after daughter Jess
My daughter Jessica was so buoyed up by caring friends and our company staff after her painful spinal operation last winter, she set up a fund-raising page. She asked people to donate just a pound, or whatever they could spare. Jessica, who is 14, has limb girdle muscular dystrophy (LGMD2D), a muscle-wasting condition which
So much is worth waiting for in February – says Emily Bonner
Life with muscle-wasting condition involves a lot of waiting and, as we transition from January to February, there is plenty which is worth waiting for. I may sign up to a class or two at my local arts centre where they have just launched online events. I rather fancy splashing some paint about and getting
Emily on ‘Breaking Out’ in Lockdown 3
In my last blog it was lockdown 2.0, and now we find ourselves in the midst of a third. In the same way as last time, it hasn’t really changed anything for me but I’m pleased we are on the right side of Spring with that to look forward to. In a way, the anticipation before
Emily’s 21-day Yoga challenge
Emily Bonner has completed a 21-day yoga challenge on Zoom – which she accidentally got into after signing up her sister, who unlike Emily does not live with a muscular dystrophy condition. Here she describes the challenges and also how she has built her ability. Knowing she’d really enjoy it, I signed my sister up
A ‘virtual’ postcard from Milan
A new virtual travel experience, from Limitless Travel, invites anyone in the MDUK community to book hour-long interactive video sessions, hosted by expert guides. These Zoom calls give guests a travel opportunity through video and pictures. Whether it’s an hour strolling through Paris, excavating Pompeii ruins with an archaeologist or meditating with a Buddhist nun,
A ‘virtual’ postcard from Florence
A new virtual travel experience, from Limitless Travel, invites anyone in the MDUK community to book hour-long interactive video sessions, hosted by expert guides. These Zoom calls give guests a travel opportunity through video and pictures. Whether it’s an hour strolling through Paris, excavating Pompeii ruins with an archaeologist or meditating with a Buddhist nun, these
A ‘virtual’ postcard from Tokyo
A new virtual travel experience, from Limitless Travel, invites anyone in the MDUK community to book hour-long interactive video sessions, hosted by expert guides. These Zoom calls give guests a travel opportunity through video and pictures. Whether it’s an hour strolling through Paris, excavating Pompeii ruins with an archaeologist or meditating with a Buddhist nun, these
A ‘virtual’ postcard from Prague
Prague – not for the faint-hearted!
A ‘virtual’ postcard from Dublin
A new virtual travel experience, from Limitless Travel, invites anyone in the MDUK community to book hour-long interactive video sessions, hosted by expert guides. These Zoom calls give guests a travel opportunity through video and pictures. Whether it’s an hour strolling through Paris, excavating Pompeii ruins with an archaeologist or meditating with a Buddhist nun, these
News
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Changing Places consultation open to 23 April
Add your voice to our biggest consultation yet
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SMC approves Zolgensma for restricted use
SMA gene treatment Zolgensma accepted for restricted use
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2021 UK Neuromuscular Research Conference
Find out about the research updates shared at the meeting
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Join MDUK's cooking and wine tasting event
Tickets are £125 per household and include three bottles of wine
Events calendar
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11
Virtual Royal Parks Half Marathon
11 April 2021
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18
Brighton 10K 2021 (Brighton Marathon Weekend)
18 April 2021
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29
An evening with William Sitwell & Jesse Dunford Wood
29 April 2021
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