There is no excerpt because this is a protected post.
This week it was announced that the Duchenne muscular dystrophy treatment, Translarna, will now be available to children aged two to five in England via the existing Managed Access Agreement (MAA). As a result, Muscular Dystrophy UK and Action Duchenne have updated their frequently asked questions below, including details about Translarna and the MAA process.
Sam Middleton, an ex-infantry soldier, is set to take on the Great North Run this September. By running for MDUK, Sam is joining a #TeamOrange of 160 among 55,000 taking part in the world’s largest half-marathon. Sam decided to take on this challenge for MDUK as he was diagnosed with facioscapulohumeral muscular dystrophy (FSHD) in 2012.
Love the races? Volunteers will get free entry! Can you spare an hour or two to come along and raise awareness, hold (not shake!) a bucket and spread some orange joy at our Windsor Racecourse collection on Sunday 30 June? Volunteers will get free entry (tickets are usually £19 on the door) – the racecourse are […]
Take to the skies for a roaring good time! Skydive with pride for Muscular Dystrophy UK’s family fund Leo’s Pride. Sign up today for only £29 from the three dates provided and pledge to raise a minimum of £399 sponsorship. Family Fund Leo’s Pride has been set up by Louise and Mitchell to help raise […]
Always wanted to Skydive? But think jumping out of a plane isn’t for you? You need to try the exciting world of Indoor Skydiving at Belfast’s new venue We are Vertigo! Why not sign up to indoor skydive this year and join #TeamOrange. After being suspended in mid-air for a flight, you would have funded […]
Can you take the heat?! We’re looking for some brave fundraisers to make a barefooted walk over 800 degree burning hot coals for MDUK. You will need to overcome the fear that strikes you as the heat burns your cheeks when you stand at the end of the firewalk, you will need to push past […]
Join us in May at Manchester Museum for Stanley’s Big Day Out! We are opening the doors of the museum to help raise awareness of Muscular Dystrophy UK and how we help people living with a muscle wasting condition and it’s all centred around a rather large dinosaur called Stan! We will have loads of […]
Seeking a new challenge? Take the leap for #TeamOrange and skydive for Muscular Dystrophy UK on Saturday 28 September 2019! By the time you land, you’ll have funded nine hours of groundbreaking research. Over the last five years we have managed to raise over £700,000. Rob Newman took part in Make Today Count for his […]
Charles Horton, Regional Development Manager for Muscular Dystrophy UK, was delighted to be invited to attend a meeting of the Clay Cross Probus Club recently where he collected a donation from the club members for £1,000. The money was raised through a race night held in conjunction with the Clay Cross Parish Council as a
Ban on plastic straws in England planned for 2020.
The government has launched a public consultation into
Exon skipping and genome editing were tested in the lab
Tireless Tyrone fundraiser receives MBE