Come along to our East Midlands Neuromuscular Conference which is taking place at The Showroom in Lincoln. The regional conference will be a great way to meet people in your local area affected by muscular dystrophy or a related condition and share information and advice. It’s also a chance to hear from expert neuromuscular health […]
Come along to the East Midlands Muscle Group in Nottingham. Muscle Groups are a great way to meet people affected by muscular dystrophy or a related neuromuscular condition in your local area and share information and advice in a relaxed and informal setting. The meeting is taking place from 2pm-4pm on Thursday 14 March 2019 at the Holiday […]
Blakemore Wholesale, based in the West Midlands spent the run up to Christmas raffling off donations from their suppliers to raise vital funds for research into Duchenne muscular dystrophy. Motivated by a close friend of the company, who has a son with the condition, Blakemore went on to raise a fantastic £1294. A cheque was
David and Sheila Fairweather light up their house every year at Christmas, entertaining many locals and passers-by. This year due to a neighbour’s connection to muscular dystrophy they have decided to take donations in aid of Muscular Dystrophy UK. The display is really magical and easy to find and park. Supporters are encouraged to visit
The Midland’s newest family fund was set up in April by the Booth family from Weston in Stafford. George aged 5 was diagnosed with Becker muscular dystrophy in January 2017. They set up A Cure for George to raise awareness and fund research into Becker muscular dystrophy. Having set a target of £10,000 for the
Earlier this month Terry Bull from Solihull set off with the aim to climb the almighty Mont Blanc in memory of his mum Mary, who sadly passed away from muscular dystrophy when he was young. This wasn’t a straightforward challenge and had taken months of preparation and training. Due to adverse weather Mont Blanc was
Last week the students at Myra Tiffin Performing Arts School presented a cheque for £2,015 to the locally based Muscular Dystrophy UK family fund “Oscar Says” raising money for research into Duchenne Muscular Dystrophy. Oscar was diagnosed with this condition in 2013 at the age of four. Each year the school holds their annual showcase
Ellen Snead is 18 from Coventry and was diagnosed with Myofibrillar myopathy in 2007. Ellen says: “As a child I was walking around everywhere, but did need a buggy for long distances. I was a very independent and helpful little child. As I got older my breathing has got weaker and my arms and legs.
Health professionals, commissioners and people affected by neuromuscular conditions from the Midlands have come together to improve care and support at regional meetings. Events have already taken place in Birmingham and Loughborough with other meetings taking place around the country over the coming weeks. Recent key developments in each region are outlined below: West Midlands:
Ban on plastic straws in England planned for 2020.
The government has launched a public consultation into
Exon skipping and genome editing were tested in the lab
Tireless Tyrone fundraiser receives MBE