Latest news on access to Spinraza

Latest news on access to Spinraza

On 3 June 2019 NICE released its final appraisal document (the appraisal committee’s final draft guidance about the NHS funding the treatment in England) and the draft managed access agreement (MAA) relating to Spinraza (also known as nusinersen). You can see all the documents on the NICE website. The draft MAA has caused great concern amongst

NICE publishes guidance for Spinraza

Today NICE released its final appraisal document (the appraisal committee’s final draft guidance about using a treatment on the NHS ) and the draft managed access agreement (MAA) relating to Spinraza. You can see all the documents on the NICE website.   A managed access agreement is an agreement between NHS England and NICE that allows

Latest NICE update on Spinraza

Almost eight weeks since the third NICE committee meeting NICE has released a statement that the discussions between NHS England and Biogen will be discussed at another committee meeting next week on Wednesday 8 May.   NICE’s statement reads: Following the meeting on 6 March 2019, the appraisal committee asked NHS England and Biogen to

Launch of application process for Changing Places toilets

Motorway service stations in England can apply for Changing Places toilets funding from today, thanks to a £2million commitment from the Department for Transport. More than a quarter of a million people in the UK with disabilities need fully accessible Changing Places toilets, and the funding will improve accessibility across the motorway network so they

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