Scotland Cross Party Group meeting

Scotland Cross Party Group meeting

The next Cross Party Group on Muscular Dystrophy meeting in the Scottish Parliament, chaired by Jackie Baillie MSP, will be on Wednesday 12 June from 5.30pm to 7pm in Committee Room 3 at the Scottish Parliament. Cross Party Group meetings are a chance to discuss the priorities for developing care and support services available for […]

Supporting the Needs of Carers

‘Supporting the Needs of Carers’ is a free event for carers of individuals who are affected by muscular dystrophy or a related muscle condition. This event will take place at The Redhurst Hotel, 27 Eastwoodmains Rd, Giffnock, Glasgow G46 6QE on the 14 June 2019 from 11am to 4pm. This event will focus on various aspects […]

Scotland Muscle Group meeting

The next Scotland Muscle Group meeting will be held in Glasgow on Saturday 29 June from 2pm to 4pm at The Redhurst Hotel, Eastwoodmains Rd, Giffnock, Glasgow, G46 6QE. Muscle Groups are a great way to meet and keep in touch with people affected by muscular dystrophy or a related neuromuscular condition in your local […]

Skydive with Pride

Take to the skies for a roaring good time! Skydive with pride for Muscular Dystrophy UK’s family fund Leo’s Pride. Sign up today for only £29 from the three dates provided and pledge to raise a minimum of £399 sponsorship. Family Fund Leo’s Pride has been set up by Louise and Mitchell to help raise […]

Scotland Cross Party Group meeting

Come along to the next Cross Party Group on Muscular Dystrophy meeting in the Scottish Parliament, chaired by Jackie Baillie MSP, on Wednesday 27 February from 1pm to 2.30pm in Committee Room 3. Cross Party Group meetings are a chance to discuss the priorities for developing care and support services available for people with muscle-wasting conditions in […]

Scotland vs Middlesbrough PFC

Saturday 15 December marked a day in history and a huge step forward for Scottish Powerchair Football, as Scotland played their first game on the international stage. The newly formed National side faced Middlesbrough Powerchair Football Club in an exciting club vs country friendly fixture. The day began with an inspirational presentation from Scottish Football

Nightrider Glasgow

Nightrider Glasgow is back for the second year running and we’re delighted to be able to offer a number of charity places in this 2019 cycle challenge! Taking place throughout the night, Nightrider is a charity ride which is all about having fun, seeing the sights and taking on a personal challenge. You can choose […]

New ultra-orphan pathway in Scotland

Today, the Scottish Government unveiled their new pathway for ultra-orphan treatments. Companies will be expected to complete a proforma to determine whether they are eligible for the ultra-orphan pathway before they make a submission. This process is expected to take around 6 weeks. To be considered as an ultra-orphan medicine all criteria listed should be met:

MDUK Scottish Premiership & Championship Preview

The MDUK Scottish Powerchair Football Premiership & Championship return Sunday October 7 to The Peak, Stirling Sports Village. For the first time ever, Scotland will boast two competitive leagues of fast paced, exciting action. MDUK Championship Riverside PFC enter the MDUK Championship as Powerchair Football’s newest club after a tremendous effort by many to ensure

Family hit £750,000 investment into myotonic dystrophy with new St Andrews project

A £35,000 investment into myotonic dystrophy at St Andrews University will ‘bring hope’ to those living with it, says Diana, Countess of Lindsay. The money takes the total invested into myotonic dystrophy research by the Cranbury Foundation, which is closely tied to Lady Lindsay’s family, to over £750,000. The last 35 years of funding, delivered

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