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News, blogs and stories

Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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Image of 7 volunteers in their MDUK Orange T-shirts holding cakes, balloons and in front of a table of fundraising materials
‘As a shy teenager, volunteering really pushed me out of my comfort zone – for the better’
I first got into volunteering while doing my degree in public relations. It was that classic case…
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Blog
Image is of a researcher with bright green gloves on filling out a form. Over the top is an orange banner that says 'Get Involved' in capitalised white font
Supporting someone living with myasthenia gravis – share your experience to further new treatment decisions
Reviewing the impact of myasthenia gravis on caregivers An important factor in NICE’s decision…
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Your story
Image of Daniel in front of a scenic background of countryside and a cloudy, blue sky. Daniel is wearing a red puffer jacket, glasses, hat and his CPAP mask.
From volunteering for NASA to improving standards of care for people with Duchenne muscular dystrophy – this is Daniel’s story
Finding something positive you can do is so important, especially when you’re living with a…
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Blog
Professor Volker Straub standing in a windowed hallway, smiling at the camera
(Sky)dive into research – my chat with Professor Volker Straub
Researchers often highlight the importance of teamwork. I worked in an academic environment for…
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News
News-Update
New report published on newborn screening for rare conditions
Newborn babies in the UK are currently screened for nine – soon to be ten – rare, but serious,…
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News
News-Update
US FDA advisory committee votes on Sarepta SRP-9001 gene therapy to treat Duchenne muscular dystrophy ahead of a FDA’s final decision
UPDATE: On 24 May 2023, Roche published an update in which they stated that the FDA's final…
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Your story
Anne and Trevor Peterson are stood with lots of medals on one arm each, with their other arm around each other. They are smiling.
Mother’s promise to dying son to continue making a difference
Anne shared her emotional story with thousands of people when she officially started this year’s…
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Your story
Louise is sat on a mobility scooter on the beach, smiling with her thumbs up. She's wearing a green puffer jacket and a woolly hat
"I wish I could dance on the outside too” – Inclusivity and advice for Mental Health Awareness Week 2023
‘Go running to combat anxiety!’ read the headline of an online article that appeared on my Facebook…
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Your story
Gemma and her family are sat a picnic table
Going the distance for muscular dystrophy research at the Great North Run 2023
I remember the first time I ran the Great North Run, back in 2021.   I was coming up to a bridge…
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Blog
Group of runners at the Oxford Town and Gown all running towards the camera
Meet the #TeamOrange runners going the distance at Bidwells Oxford Town & Gown 10k to help fight muscle-wasting conditions
We are excited to welcome the thousands of runners joining us at the historic Bidwells Oxford Town…
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