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The first document, which answers questions about Spinraza and how it works, can be found here.…
News
Patients who are eligible under the terms set out in the Managed Access Agreement will be able to…
News
The latest guidance was issued on 31 May, and applies to people in England and Wales. We know many…
Your story
The Great North Run isn’t the only challenge this running duo are preparing to take on. They are…
News
The campaign, Walk with Carmela, is fronted by six-year-old Carmela Chillery-Watson, who has LMNA-…
Press release
  Rob Burley, Director of Campaigns, Care and Support at Muscular Dystrophy UK, said:     “The…
News
AveXis, which developed the treatment, announced the news on its website. You can read its press…
News
On the day which would have been a grand affair in the Long Room at Lord’s, we’re holding our…
News
NICE, NHS England and NHS Improvement have taken advice from clinical experts and consulted with…
Your story
When Scott’s friend James had his son Rory in 2015, Rory and Scott instantly became best pals. Rory…