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When I fell pregnant with my first son, Frankie, it felt like a miracle. I’d had five miscarriages…
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Having been diagnosed with limb girdle muscular dystrophy 25 years ago, I am used to managing my…
Your story
I contacted the helpline a couple of years ago, before I worked here, about my housing situation. I…
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The Scottish Medicines Consortium (SMC) has completed its assessment of efgartigimod alfa (Vyvgart…
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One of the largest conferences in the field of neuromuscular research the WMS Congress brings…
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This free event, at the T3 Conference Centre, Lisburn, provided practical information and support…
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Living with CMT has limited areas of my life. Some of the everyday things that people without my…
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The National Institute for Health and Care Excellence’s (NICE) have published draft guidance ‒…
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On Sunday 15 October Angela, with her husband Brian, will officially start Bidwells Cambridge Town…
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Reducing inequalities
Tackling health inequalities is a long-standing aim of both the UK…