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In the Chancellor’s Autumn Statement on 17 November 2022, we were pleased to hear commitments to…
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Having a muscle-wasting condition means there are lots of additional costs, which other households…
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It is only through your help that we are able to fund vital research, and offer care and support to…
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Earlier this year, a team led by researchers at Newcastle University conducted a study to shed…
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In February, we revealed that there are now 110,000 people living with muscle-wasting conditions in…
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In January 2021, the UK Government published the UK Rare Disease Framework, laying out the 4 main…
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While some people living with muscle-wasting conditions tell us of the social isolation they feel,…
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It is only through your help that we are able to fund vital research, and offer care and support to…
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SMA newborn screening currently takes place in many European countries but thus far hasn't been…
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Since the lifting of all COVID-19 restrictions, including shielding for the clinically vulnerable,…