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Ben: I have Limb Girdle Muscular Dystrophy, and I’m 35 years old. I studied video editing at…
Blog
The National Institute for Health and Care Excellence (NICE) has published draft guidance that…
News
Patients have been informed that the current lead consultant will be leaving at the end of March…
Your story
I contacted the helpline a couple of years ago, before I worked here, about my housing situation. I…
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This free event, at the T3 Conference Centre, Lisburn, provided practical information and support…
Blog
Living with CMT has limited areas of my life. Some of the everyday things that people without my…
News
The National Institute for Health and Care Excellence’s (NICE) have published draft guidance ‒…
News
On Friday, 22 September, PTC Therapeutics, the company that manufactures Translarna, issued a…
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Reducing inequalities
Tackling health inequalities is a long-standing aim of both the UK…
Your story
When we first learned that Esmae and Grace both had limb-girdle muscular dystrophy, we found the…