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NICE, NHS England and NHS Improvement have taken advice from clinical experts and consulted with…
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On 6th May, SMA UK, TreatSMA and MDUK, sent this joint letter to the NICE Programme Director –…
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You can read the statement in full here.
The statement sets out considerations for patients (and/…
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The treatment, which has been developed by AveXis, is recommended by the agency's Committee for…
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AveXis started to roll out this programme in January 2020 for children age under 2 years who have…
Your story
Since being diagnosed, Lynne has broken bones after falling on a number of occasions. Three years…
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The study showed improvement in muscle function in people with SMA type 2 and 3 when treated with…
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Promising results from SMA FIREFISH trail
Roche have announced positive results from Part 2 of its…
Your story
He began receiving Spinraza – the first and only treatment for the condition – last year, and Amy…
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We are delighted to share this news with the SMA community. Without the support and hard work of…