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Thank you to everyone who responded to the survey about accessible clothing that I carried out last…
Blog
Wolverhampton retiree, David Salt hosted his 15th annual charity golf day, at South Staffordshire…
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With growing interest from several pharmaceutical companies around clinical trials for FSHD, FSHD…
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Inspired by their favourite superheroes from the Avengers, Oscar and Seb Spink will be climbing the…
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On the day, the weigh-in was followed with a video briefing, which made it all look so easy.  Next…
Your story
West Bromwich vicar, Lisa Mitchell, was 30 when she was diagnosed with facioscapulohumeral muscular…
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David Howard, who has facioscapulohumeral muscular dystrophy (FSHD), is excited to be taking on the…
Your story
Nikita, Natasha, Alisha and Alannah Ellithorn’s mum Sandra had Facioscapulohumeral muscular…
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Acceleron Pharma has announced the US Food and Drug Administration (FDA) has granted Fast Track…
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After the passing of her mum Sandra Nightingale in September 2017, Nikita Ellithorn decided that…