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Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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It is only through your help that we are able to fund vital research, and offer care and support to…
Blog
Earlier this year, a team led by researchers at Newcastle University conducted a study to shed…
Blog
In February, we revealed that there are now 110,000 people living with muscle-wasting conditions in…
Blog
In January 2021, the UK Government published the UK Rare Disease Framework, laying out the 4 main…
Blog
While some people living with muscle-wasting conditions tell us of the social isolation they feel,…
Publication
It is only through your help that we are able to fund vital research, and offer care and support to…
Blog
SMA newborn screening currently takes place in many European countries but thus far hasn't been…
News
Since the lifting of all COVID-19 restrictions, including shielding for the clinically vulnerable,…
News
MDUK is delighted to announce that more than 500 new Changing Places toilets will be built across…
News
The England Rare Diseases Action Plan is the first of four action plans, which will cover each of…