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News, blogs and stories

Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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Professor Volker Straub standing in a windowed hallway, smiling at the camera
(Sky)dive into research – my chat with Professor Volker Straub
Researchers often highlight the importance of teamwork. I worked in an academic environment for…
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News
News-Update
US FDA advisory committee votes on Sarepta SRP-9001 gene therapy to treat Duchenne muscular dystrophy ahead of a FDA’s final decision
UPDATE: On 24 May 2023, Roche published an update in which they stated that the FDA's final…
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Your story
Anne and Trevor Peterson are stood with lots of medals on one arm each, with their other arm around each other. They are smiling.
Mother’s promise to dying son to continue making a difference
Anne shared her emotional story with thousands of people when she officially started this year’s…
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Blog
Group of runners at the Oxford Town and Gown all running towards the camera
Meet the #TeamOrange runners going the distance at Bidwells Oxford Town & Gown 10k to help fight muscle-wasting conditions
We are excited to welcome the thousands of runners joining us at the historic Bidwells Oxford Town…
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Your story
2 image collage of Sara - on the left, she's wearing a green dress and in front of lots of trees. On the right, it's a selfie of Sara wearing a multi-colour floral shirt
“Sometimes, having the heating on is the only way I can stop my muscles hurting – so what happens when people like me can’t afford the energy bill?”
I have rigid spine syndrome muscular dystrophy (RSMD). My condition mostly affects my back, neck,…
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Your story
Gabby Logan at the Celebrity Sports Quiz
Gabby Logan on turning 50 and her favourite memories in her five years as MDUK’s president
Back in 2018, when I met up with MDUK to talk about the charity and its origins, I was absolutely…
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Blog
Collage of the Team Orange runners in the blog (fltr) Sid, John, Caroline, Charlie, Debbie, Susanne, Gitte and Karl
Good luck to all our MDUK marathon runners going the extra mile for people living with muscle-wasting conditions
Good luck Gitte Three years ago, keen runner Gitte was diagnosed with myositis, a rare auto-immune…
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Your story
Selfie of Charlotte, Josie and their family
“I’ll just do it the Josie way!”: What it’s like living with muscular dystrophy as a five-year-old
Josie is a fun loving, artistic five-year-old who loves school, swimming, playing with her little…
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Blog
Charlie Hodgson smiling with a medal round his neck, leaning on the Aviva Premiership trophy
Retired England rugby player Charlie Hodgson tackles the London Marathon
Why are you fundraising for MDUK?   I’ve attended MDUK’s Celebrity Sports Quiz events at Lords…
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Blog
Image of Jack McLellan in a suit, smiling
”Typing up a storm – why we need better awareness of disabilities and adjustments in the workplace”
Many people would have been shocked and surprised by such a negative and inaccurate worldview being…
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