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Today the BBC have highlighted that just after announcing the Disability Action Plan, the…
News
In January 2019, we partnered with the University of Oxford to form the MDUK Oxford Neuromuscular…
Blog
Understanding self-management support programmes
Self-management support (SMS) is a care programme…
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XLMTM and liver disease
Over the past few years, it’s become clear that some people with XLMTM can…
Blog
This Disability History Month, we really wanted to give people an opportunity to share what they…
News
In September we shared the news that NICE had published draft guidance on the use of the treatment…
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Jack: The theme of this year’s UK Disability History Month is childhood and youth, and my colleague…
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Today I’m delighted to publish our 2022/2023 Impact Report. A year in which we rallied our…
Blog
I first became a Trustee of a charity 19 years ago for a London homeless organisation called Thames…