News, blogs and stories

Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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We are delighted to announce that Muscular Dystrophy UK (MDUK) is partnering with the charity…
News
We are delighted to announce changes in the UK SMA Patient Registry! Information about the daily…
News
We’re delighted to announce the outcomes of our grant round from 2021. There are some very exciting…
Blog
SMA newborn screening currently takes place in many European countries but thus far hasn't been…
News
We were joined by Occupational Therapists Colin Jones and Bea Moon, parent Gerry McMenemy and…
News
Last year we were saddened by the death of His Royal Highness, Prince Philip, our Royal Patron. His…
News
The Northern Ireland Rare Disease Action Plan is the second of four action plans to be published,…
News
Since the lifting of all COVID-19 restrictions, including shielding for the clinically vulnerable,…
News
We were joined in our SMA seminar by Consultant Neurologist Dr Channa Hewamadduma, NICE…
News
We're delighted to announce that KINTO UK - part of Toyota’s Fleet Mobility Service - has named…