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Carmela, who has L-CMD, took on a 3k cycle as part of the Celebrity Superhero Tri 2018 at Lake…
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He began receiving Spinraza – the first and only treatment for the condition – last year, and Amy…
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Her son Tommy, 13, was newly diagnosed with LGMD when she met Martin Hywood, 44, and the three are…
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Rich Copson, 33, has taken on a series of extreme sport challenges in the Lake District with the…
Blog
Chloe here! One of the last blogs I wrote for MDUK was a couple of years ago and called “vent about…
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Please help ensure families like mine have the support we need at Christmas – and all year round –…
Blog
Difficulties around finding clothing that suit my body shape has a direct negative impact on my…
Press release
Clare Lucas, Head of Policy and Campaigns at Muscular Dystrophy UK, which co-chairs the Changing…
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All I will say is; yes it sucks, hugely, but I will not allow it to completely destroy my life,…
News
Santhera Pharmaceuticals has announced that the UK’s Medicines and Healthcare products Regulatory…