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Press release
Catherine Woodhead, Chief Executive of Muscular Dystrophy UK, which co-chairs the Changing Places…
Press release
Clare Lucas, Head of Policy and Campaigns for Muscular Dystrophy UK, which co-chairs the Changing…
Your story
We spoke to Sam about the value of volunteering to him and why he continues to get involved after…
Your story
Through their family fund, Leap for Luke, Claire has organised a vast number of volunteering and…
Blog
I went to Splendour Festival in July last year and I dressed appropriately. I have a pair of…
Your story
I exist alongside constant deterioration of my arm, hand, finger and breathing muscles. Technology…
News
We are delighted to share this news with the SMA community. Without the support and hard work of…
Press release
Spinraza – the first treatment for the rare condition spinal muscular atrophy (SMA) – is clinically…
Press release
It has been 16 months since NICE started its appraisal of Spinraza, the first treatment for the…
Blog
I am 30 years old and I have the progressive condition, Ullrich congenital muscular dystrophy. As a…