Search icon Open mobile navigation

News, blogs and stories

Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

Advanced filters

Blog
3 images side by side - one of Peter Neville, one of Caroline Ballisat and one of
CMT support group friends take on world’s longest Zipline
The CMT Friends UK group has provided desperately needed contact for so many people living with…
Read more
Blog
Image of Andy Davies in the garden, next to a wheelchair
Former Himalayan trekker launches epic new Thames Source to Sea event
Andy Davies, from Arundel, has created a bold new community challenge to fundraise for Muscular…
Read more
Blog
Banner that says '5 things you should know about SMA'
5 things you should know about SMA
1. SMA is a progressive muscle wasting condition  Over time, SMA causes muscle weakness and loss…
Read more
Blog
2 picture collage; one is a selfie of Brigid and Chris smiling with their bike helmets on, the other is of them riding on their tandem bike
Aunty takes on 24-hour tandem cycle for her nephews who live with Becker muscular dystrophy
Brigid Night clocked up 333 miles with her friend Chris Hansen Jones on non-stop 24-hour tandem…
Read more
Blog
Finlay outside front door, wearing Muscles Matter hoodie
“He is finally able to live the life of a 9-year-old schoolboy” - How access to treatment changed Finley’s life
Through our research into better drugs and treatments, and our involvement in the NICE and the SMC…
Read more
Blog
Image of Dymphna Kennedy with quote "Having access to resources like this handbook is a big key to helping myself and other members of my family."
MDUK launches Fatigue Management handbook to support people living with neuromuscular conditions
Fatigue is a very common symptom that so many people with neuromuscular conditions experience.…
Read more
Blog
Physios at MDUK Conference
The assessment results of SMA standards of care in the UK
Earlier this year, a team led by researchers at Newcastle University conducted a study to shed…
Read more
Blog
Image of Hilary Irwin with quote 'I have found it very isolating at times living with fatigue and the document reinforces the fact that you are not the only one dealing with it.'
Hilary Irwin who lives with mitochondrial disease says new fatigue management resource is ‘vital for increasing awareness’
Many people living with neuromuscular conditions suffer greatly from fatigue. Lack of understanding…
Read more
Blog
Benjamin James, a patient representative for the Adult NorthStar Network, and Prof Ros Quinlivin, the chair (of the Network)
New videos to help adults with Duchenne muscular dystrophy access the standard of care they need
In association with the Adult NorthStar Network, MDUK has funded and produced a new collection of…
Read more
Blog
Abby & Gillian in MDUK running jersey
Unstoppable mum and daughter team tackle half marathon every month this year for their friend with Duchenne
Abby, 30, and her mum Gillian, 51, are taking on an incredible fundraising challenge for their…
Read more