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On Friday, 22 September, PTC Therapeutics, the company that manufactures Translarna, issued a…
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Translarna currently has a conditional marketing approval (authorisation) from the EMA, given in…
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Our new research grants cover a variety of different muscle-wasting conditions, such as ADSSL1…
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NICE recommendations
Although not NICE's final guidance on this medicine, the draft guidance…
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Being diagnosed with a muscle-wasting condition often means adjusting to a new and unexpected…
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There is a target in place for people to be assessed and wheelchairs to be delivered to them within…
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On 1 August 2023, the National Institute of Health and Care Excellence (NICE) formally launched its…
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Today NHS England have released new data which shows nearly three in four babies born with Spinal…
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How these closures might affect people with muscular dystrophy
These closures could be…
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People often think of a brand as a name and logo. But it's about who we are, what we do and why we…