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A family stands in the park. A mum, dad and two young boys.
Double your Donation 2023
  Image         Why is this…
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An image of the inside of a Changing Places Toilet at Elland Road Stadium. In the image you can see a toilet, a hoist, an adult changing table.
Celebrating a landmark day with the 2,000th Changing Place toilet at Leeds United
Changing Places toilets have more space than standard accessible toilets, and include essential…
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"News update" in lime green text on a bright orange background.
Myasthenia gravis treatment Efgartigimod not recommended for use in Scotland
The Scottish Medicines Consortium (SMC) has completed its assessment of efgartigimod alfa (Vyvgart…
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Trustees Week logo: Navy blue font reading 'Trustees' Week' with an purple, pink, orange and blue star-like shape.
Announcing our latest Trustees
This Trustee’s Week (6 - 10 November 2023) we’re delighted to announce three new Trustee…
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"News update" in lime green text on a bright orange background.
One-year results of the EMBARK Phase 3 study
UPDATE (3 November 2023): A webinar regarding the EMBARK study results for families took place…
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A computer generated image of a garden. A wide accessible path weaves through a garden full of silver birch, foxgloves and ferns.
We'll be at RHS Chelsea Flower Show 2024
We’re thrilled to announce that we’ll be at the RHS Chelsea Flower Show next year! Our Show Garden…
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A close up of gloved hands in a lab. They are using research equipment.
2024 research grant round now open for applications
Calling all researchers – we’re pleased to announce the 2024 Grant Round for research proposals…
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Breaking News
NICE publishes draft guidance on ravulizumab for treating generalised myasthenia gravis
The National Institute for Health and Care Excellence’s (NICE) have published draft guidance ‒…
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Breaking News
Update on the European Medicines Agency recommendation not to renew Translarna marketing authorisation in the European Union
On Friday, 22 September, PTC Therapeutics, the company that manufactures Translarna, issued a…
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Breaking News
European Medicines Agency makes recommendation not to renew Translarna marketing authorisation in the European Union
Translarna currently has a conditional marketing approval (authorisation) from the EMA, given in…
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