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The survival of people with DMD has significantly increased over recent years owing to improvements…
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The Garfield Weston Foundation
Established in 1958, the Garfield Weston Foundation is a family-…
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We are delighted to announce that Muscular Dystrophy UK (MDUK) is partnering with the charity…
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We are delighted to announce changes in the UK SMA Patient Registry! Information about the daily…
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We’re delighted to announce the outcomes of our grant round from 2021. There are some very exciting…
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We were joined by Occupational Therapists Colin Jones and Bea Moon, parent Gerry McMenemy and…
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Last year we were saddened by the death of His Royal Highness, Prince Philip, our Royal Patron. His…
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The Northern Ireland Rare Disease Action Plan is the second of four action plans to be published,…
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Since the lifting of all COVID-19 restrictions, including shielding for the clinically vulnerable,…
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We were joined in our SMA seminar by Consultant Neurologist Dr Channa Hewamadduma, NICE…