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It feels like Christmas Eve – Chloe Ball-Hopkins as shielding lifts
Well it might be the end of March but I feel like a child on Christmas Eve. I know some are still apprehensive about shielding coming to an end, which is understandable after how long it’s been, but for me personally I cannot wait to get out.
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I’ve known for a long time how fragile life is. The world’s just catching up
Jonathan Gilmour, who has Duchenne muscular dystrophy, is a postgraduate student at Cambridge University. His college, St John’s, has shared a blog which he has written about living with the condition during the pandemic.
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A ‘virtual’ postcard from Pompeii
Dear fellow MDUK members,
We are in Pompeii!
I have been here before many years ago, but I had no idea that pre that massive eruption Vesuvius – (it erupted and covered Pompeii in AD 79!!) Versuvius was twice as high and had just one peak.
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Lockdown: Chapter 3
I’m sure many of you who use PAs and carers are in similar circumstances to me right now, whereby all of a sudden, no matter how good your normal support structure is, you are back to relying on family and close friends for essential daily support.
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How acceptance therapy gave me the confidence to travel
This summer I travelled with Thomas and carer to a different city every week of the summer holidays
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A review on I, Daniel Blake – warning contains spoilers!
Having seen the trailers for this film at my local cinema and with my wife having a form of muscular dystrophy (oculopharangeal muscular dystrophy – OPMD), we were determined to see this film which we did last night (Tuesday 1st November).
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A holiday romance – or in my case a lifelong one!
Alan and I met on holiday in Magaluf; I was 18 and it was my first girlie holiday.
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City Bridge Trust Work Experience
Matilda Ibini, shares her story about work experience at the Muscular Dystrophy Campaign.
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The Library of Birmingham
A quick review
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What do you do with yours?
From Friday 18th October, the Care and Support Alliance are asking #WhatDoYouDoWithYours? Do you go to the shops, go to work, see your friends? We’re asking you to share on Twitter and Facebook what you can do in your life because of social care – to incr
News
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Changing Places consultation open to 23 April
Add your voice to our biggest consultation yet
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SMC approves Zolgensma for restricted use
SMA gene treatment Zolgensma accepted for restricted use
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2021 UK Neuromuscular Research Conference
Find out about the research updates shared at the meeting
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Join MDUK's cooking and wine tasting event
Tickets are £125 per household and include three bottles of wine
Events calendar
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18
Brighton 10K 2021 (Brighton Marathon Weekend)
18 April 2021
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29
An evening with William Sitwell & Jesse Dunford Wood
29 April 2021
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30
Captain Tom 100
30 April 2021
Near you
