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A ‘virtual’ postcard from Athens
Dear fellow MDUK members
Today we went on a street art tour of Athens with Thomas and Kalliopi to see the alternative side to the city.
What can I say? I really, really enjoyed it! This is totally my thing.
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Cinema thoughts
Rupert shares his experiences of accessing the cinema
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A holiday romance – or in my case a lifelong one!
Alan and I met on holiday in Magaluf; I was 18 and it was my first girlie holiday.
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The Library of Birmingham
A quick review
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APPG for Muscular Dystrophy’s Inquiry Report Launch on access to drugs for rare diseases
N.B.: PLEASE NOTE, THAT ALL THOUGHTS, LINKS AND WORDS BELOW ARE MY OWN, AND DON’T NECESSARILY REFLECT THE OPINIONS OF THE MUSCULAR DYSTROPHY CAMPAIGN / TRAILBLAZERS OR MY WORK WITH THEM.
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Disability Hate Crime – the Perspective from Birmingham
A focus group looking at improving the services to victims of Disability Hate Crime.
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Attitude is the biggest barrier: Part 3
The third installment in my troubles with London Midland
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BBC London Underground Report
Today, I was interviewed by Tom Edwards (Transport & Environment Correspondent from BBC London) to do a follow up report from his previous report with me last August about accessibility on the Underground; specifically, the accessibility to Stratfo
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Tripbod
Connecting travellers all over the world with likeminded, trusted locals
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Disabled councillor faced ‘nightmare’ when attempting to gain parliamentary selection
A disabled councillor in Waltham Forest, London, has spoken of the major challenges she experienced when attempting to win selection as a parliamentary candidate.
News
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UK Rare Diseases Framework
UK Rare Diseases Framework published
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Important announcement for adults with DMD
MDUK announces completion of two projects we funded into DMD.
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AMO Pharma announces AMO-02 clinical trial
AMO-Pharma announces the initiation of REACH-CDM clinical trial
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Join Gabby Logan's live cooking lesson
Gabby will cook her Sri Lankan-style monkfish curry.
Events calendar
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1
Go Bright for the fight 2021
1 February 2021
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14
Go Bright for the fight – Virtual Balloon Race
14 February 2021
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6
Snowdonia Velocity Zip Slide for Georges Journey
6 March 2021
Near you
