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APPG for Muscular Dystrophy’s Inquiry Report Launch on access to drugs for rare diseases
N.B.: PLEASE NOTE, THAT ALL THOUGHTS, LINKS AND WORDS BELOW ARE MY OWN, AND DON’T NECESSARILY REFLECT THE OPINIONS OF THE MUSCULAR DYSTROPHY CAMPAIGN / TRAILBLAZERS OR MY WORK WITH THEM.
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News
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Reform of NHS and Social Care
Proposals for more joined up care in England
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Rare Disease Day 2021
All muscle-wasting conditions are rare
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MDUK enters joint submission to SMC
A group of charities is urging for the approval of Translarna
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MDUK CEO is taking on the toughest physical challenge of her career
Our CEO, Catherine Woodhead, is embarking on a huge cha
Events calendar
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6
Snowdonia Velocity Zip Slide for Georges Journey
6 March 2021
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11
Virtual Celebrity Sports Quiz
11 March 2021
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11
Virtual Royal Parks Half Marathon
11 April 2021
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