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What A Summer!
Published Date16/11/2009Hey all – It’s been a busy summer for me here in Northern Ireland, but I’m FINALLY back with 5 minutes spare time to update you all.
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News
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Survey for adults with SMA
We want to hear from adults with SMA about Spinraza
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Gabby Logan in Honours list
MDUK president awarded MBE
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Safety of drug use in mitochondrial disease
Updated guidance on the medicines that should be avoided
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Events calendar
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29
Snowdonia Velocity Zipslide – the fastest zipline in the world!
29 February 2020
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1
The Big Half 2020
1 March 2020
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6
South West Muscle Group meeting in Plymouth
6 March 2020
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