Anne’s Wish set sail on their fundraising journey aboard Eleshanne.

Published Date
Alexa Follen
An image of four teenagers dressed in orange t-shirts sitting down

Anne’s Wish is a Family Fund set up by Robert Eddon, in memory of his wife, Anne, who had Inclusion body myositis (IBM) and sadly passed away in February 2016. The family decided to name the fund Anne’s Wish as a reflection of her wish for a cure to be found.

The Family Fund have recently launched their new narrowboat, Eleshanne, which will be a central figure in their aim to find treatments and a cure for IBM. The modern boat, named after Anne and each of their grandchildren, has secured the Aqueduct Marina Church Minshull charity of the year nomination, where all proceeds from fundraising events will be donated to Anne’s Wish.

Speaking of the experience, Rob says:

“I returned home one day to find Anne in a collapsed and unresponsive state. Our family suffered a heart wrenching and traumatic shock when, despite the best efforts of five paramedics, she was taken to James Cook University Hospital where her passing was confirmed.”

Even during the darkest of times, the entire family have rallied to provided support for each other during those difficult periods. Rob added:

“here is a huge determination to raise money to fund research into the cause of and potential treatments for this progressive muscle-wasting condition.”

The anchor has been lifted with a whole variety of exciting fundraising activities planned including a kayak adventure along the Llangollen canal, entries into the 2017 screwball rally across Europe, a champagne sunrise at the summit of Roseberry Topping in North Yorkshire as well as participating in the Great North Run.

Anne’s Wish have gone from strength to strength having already organised a car boot sale, acquiring donations from committees and raising £800.00 from a 70’s night which celebrated Anne’s Life.

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