Prof John Weinman and researcher Chris Graham from King’s College London are looking for volunteers to help them trial a different type of intervention aimed at increasing quality of life in people with adult onset muscle disease.
Muscular Dystrophy Campaign-funded researchers, Prof John Weinman, Chris Graham, Prof Trudie Chalder and Dr Michael Rose, have developed an intervention that is aimed at increasing the quality of life of people with muscle disease. In many chronic diseases it has been noted that whilst the physical illness can have a big impact on quality of life it is not the only influencing factor. Often people’s ways of dealing with difficult thoughts and feelings and their beliefs about illness can also affect quality of life.
Chris Graham has been exploring this as part of his PhD studentship and together with Prof Weinman, Prof Chalder & Dr Rose, has devised a practical way of changing the unhelpful beliefs someone might have about their condition into more helpful beliefs. They are now ready to test the intervention in a small trial and are looking for volunteers.
The intervention is aimed at equipping people with a set of psychological skills. By mastering these skills, the researchers hope that participants will experience an improvement in their own ability to deal with difficult thoughts, feelings and unhelpful beliefs, and that this will, in turn, produce improvements in quality of life.
The trial is open to participants over the age of 18 years who have an adult onset muscle disease such as facioscapulohumeral muscular dystrophy, inclusion body myositis, becker muscular dystrophy and myotonic dystrophy.
For more information or to volunteer for the study, please contact Chris Graham on 020 7188 9324 or email@example.com
Further information and links
Read more about Muscular Dystrophy Campaign-funded research project
Find out more about the trial
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