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Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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News update
Major concerns over the future of adult neuromuscular care in Northern Ireland
Patients have been informed that the current lead consultant will be leaving at the end of March…
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News
Gabby logan stands at the front of a room of people. The screen behind reads "President's Awards. Recognising remarkable people"
Our President’s Awards
The ceremony hosted by our President, Gabby Logan MBE, took place on Monday 19 February, at the…
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News update
Government fails to act on their 2022 commitment to increase financial support through the Disabled Facilities Grant
Today the BBC have highlighted that just after announcing the Disability Action Plan, the…
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News update
Understanding your views of vamorolone, a treatment for Duchenne muscular dystrophy currently being appraised by NICE
We are supporting this process as one of two ‘Patient Experts’, and our Director of Care, Campaigns…
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The European Medicines Agency confirms recommendation for non-renewal of authorisation in the EU of Duchenne muscular dystrophy medicine Translarna
In September 2023 we shared news that the European Medicine Agency’s (EMA) human medicines…
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Dr Kate Adcock, Professor Laurent Servais, Dame Kay Davies and Professor Matthew Wood
Changing the landscape for clinical trials in the UK - celebrating the fifth anniversary of the MDUK Oxford Neuromuscular Centre
In January 2019, we partnered with the University of Oxford to form the MDUK Oxford Neuromuscular…
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Sarepta Therapeutics announce start of clinical trial for LGMD2E/R4
Limb girdle muscular dystrophy 2E/R4, also known as beta sarcoglyanopathy, is a progressive genetic…
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centre winners
Recognising outstanding neuromuscular centres across the UK
We’re delighted to announce 24 neuromuscular centres across the UK are the recipients of our…
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Medical research equipment in a laboratory
New research announced to understanding liver disease in people living with X-linked myotubular myopathy
XLMTM and liver disease Over the past few years, it’s become clear that some people with XLMTM can…
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NICE publishes second draft guidance on Efgartigimod for treating generalised myasthenia gravis
In September we shared the news that NICE had published draft guidance on the use of the treatment…
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