More people eligible for access to Spinraza following NICE MAA review.Read more
Ahead of the upcoming elections for the Scottish Parliament and Welsh Parliament on Thursday 6 May, we have put together a Manifesto for Muscles for candidates to support.
Add your voice to our biggest consultation yet
Muscular Dystrophy UK and Action Duchenne have received a public statement from NICE on ataluren (Translarna).
MDUK is delighted to bring you the news that a highly complex, innovative gene therapy is to become available on the NHS in England for the treatment of SMA type 1.
Local authorities will soon be invited to ‘opt in’ to receive a proportion of the £30m funding, based on need, to install facilities in existing buildings their communities.
The government has announced a proposed shake-up of the NHS and social care in England, which it hopes will make specialised health care, community-based health and social care "mo
We are launching a new survey on the impact of the pandemic.
The UK Government and the devolved administrations have published a new UK Rare Diseases Framework.
Brexit will have a wide ranging impact on the lives of everyone, including people living with a muscle-wasting condition.
NICE statement on pause to re-evaluation of Translarna