We are working with SMA UK and TreatSMA to gather views of adults with SMA about Spinraza.
Ten hospital trusts will receive a share of £500,000 to install much-needed Changing Places toilets at 16 sites across England
In a recent House of Commons report “People with disabilities in employment” statistics show a slight narrowing of the disabled employment gap.
NHS England and Patient Advocacy Groups have recently been focused on identification of hospitals with the right expertise to treat eligible adults who have SMA with nusinersen.
Six out of 10 supermarket chains do not have a single Changing Places toilet, according to research by Muscular Dystrophy UK.
Calls for cough assist machines to be NHS funded after Derby and Derbyshire CCG introduce new policy removing funding
World Toilet Day 2019 aims to raise awareness about the 2.6 billion people worldwide who don’t have access to toilets
The General Election is on 12 December 2019. We know that every day counts for people living with a muscle-wasting condition, but do all the Parliamentary candidates know that?
A joint survey for the paediatric SMA Community to gather information about people’s experiences of trying to access Spinraza.
On the three year anniversary of the Disability Confident scheme (November 2nd), the Department for Work and Pensions have announced changes to “help businesses achieve their goa