Access to spinal muscular atrophy (SMA) treatment Spinraza featured prominently in a House of Commons debate yesterday on NICE appraisal processes for rare disease treatments.Read more
Muscular Dystrophy UK’s Trailblazers worked with Heidi Allen MP, Chair of the Young Disabled Peron’s APPG, to submit written questions to the Secretary of State for Transport.
Letter submitted to Health Minister
The Government has released its long term plan for improving NHS care in England over the next ten years, with an extra £20.5bn allocated to the NHS budget.
The Government has show its commitment to increasing the number of Changing Places toilets
Jeremy Corbyn, Labour Leader put the disability rights questions to the Prime Minister Theresa May on December 5 2018 during the latest session of Prime Ministers Questions.
We have written to NICE, NHS England and Biogen urging them to find an access solution for the SMA treatment, Spinraza.
Recommendations published on how to improve the accessibility of roads.
The APPG for Muscular Dystrophy has launched a report on mental health support
World Toilet Day is a chance to raise awareness of Changing Places toilets
NICE has released a statement today on the latest situation regarding its appraisal of the spinal muscular atrophy treatment Spinraza (nusinersen).