Trailblazers network moves over to charity Whizz-KidzRead more
Calls for cough assist machines to be NHS funded after Derby and Derbyshire CCG introduce new policy removing funding
World Toilet Day 2019 aims to raise awareness about the 2.6 billion people worldwide who don’t have access to toilets
The General Election is on 12 December 2019. We know that every day counts for people living with a muscle-wasting condition, but do all the Parliamentary candidates know that?
A joint survey for the paediatric SMA Community to gather information about people’s experiences of trying to access Spinraza.
On the three year anniversary of the Disability Confident scheme (November 2nd), the Department for Work and Pensions have announced changes to “help businesses achieve their goa
Tesco has released a new video showing the impact of Changing Places toilets. The retailer has increased the number of Changing Places toilets across the UK in their stores.
Calls for hospitals to apply for Changing Places funding
We are calling on ambulance services to introduce flagging systems so people with muscle-wasting conditions receive the specialist support needed.
Funding has been given to motorway service stations to install Changing Places toilets.
As we approach 31 October, the date when the UK is currently scheduled to leave the EU, we have been monitoring the situation around access to medicines for UK patients.