TalkMD is an online community where adults living with a muscle-wasting condition can share their stories, make friends and ask others for advice.Read more
Ines, 34, explains just how supportive the helpline team can be. She said: "For the first time, someone who didn’t know me seemed to understand what I am going through."
Danielle Malkin and sons Theo and Jenson all have the condition. Danielle was only told she had Charcot-Marie-Tooth disease following Theo's diagnosis in 2004.
MDUK Muscles Matter 2020 – Thursday 22 October round-up
The government has released shielding guidance for people classed as clinically extremely vulnerable, a day after announcing a new, three-tiered system of Covid-19 alert levels.
MDUK Muscles Matter 2020 – Saturday 10 October round-up
Our MDUK Muscles Matter 2020 seminars continued on Wednesday 30 September with seminars on limb girdle muscular dystrophy (LGMD) and navigating the world of employment.
NICE will begin its appraisal of the SMA treatment risdiplam this autumn to decide whether or not the treatment will be made available on the NHS in England.
On Tuesday 22 September, MDUK together with Neuromuscular physiotherapist, Marina Di Marco delivered two online physiotherapy sessions to the MDUK community.
Our MDUK Muscles Matter 2020 seminars continued on Monday 14 September, virtually bringing together people living with muscle-wasting conditions from across the UK.
MDUK Muscles Matter 2020 – Wednesday 9 September round-up