Treat-NMD have published a family-friendly guide to the SMA standards of care.
Find out how we said thank you to hundreds of members of the team
The first set of care recommendations for congenital and childhood-onset myotonic dystrophy type 1, and myotonic dystrophy type 2 have been published.
"I wanted to do more. I have previously fundraised but I also wanted to help and to give something back, any way I can."
Seven new centres that support people with muscle-wasting conditions have been awarded Centres of Clinical Excellence status by Muscular Dystrophy UK, taking the total across the U
We have heard today that, subject to sign-off, Spinraza will be available on the NHS in Scotland for children and adults with SMA Types 1, 2 and 3 from April 2019.
The Government has released its long term plan for improving NHS care in England over the next ten years, with an extra £20.5bn allocated to the NHS budget.
Transport Minister Nusrat Ghani MP highlighted a commitment from the Department for Transport to provide £2million of funding for more Changing Places toilets at service stations.
Becker Awareness Week 2018 runs from 7 October to 13 October, and is a chance for us all to show our support and help people understand the condition.
Today is Limb girdle muscular dystrophy Awareness Day 2018 – a chance for us all to show our support for people affected by the condition.