SMA gene treatment Zolgensma accepted for restricted use within NHS ScotlandRead more
Local authorities will soon be invited to ‘opt in’ to receive a proportion of the £30m funding, based on need, to install facilities in existing buildings their communities.
On this year’s Rare Disease Day, Sunday 28 February 2021, we are showcasing the achievement of master craftsman Paul Tomlin and his amazing, traditional building skills.
Updated exercise advice for adults with muscle-wasting conditions
Muscular Dystrophy UK is delighted to announce the successful completion of two projects we funded to improve care and support for adults living with Duchenne muscular dystrophy.
Changing Places at the Tower of London
A new online family-friendly guide to the SMA standards of care has been launched after MDUK worked in partnership with Treat-NMD and other SMA charities.
TalkMD is an online community where adults living with a muscle-wasting condition can share their stories, make friends and ask others for advice.
Ines, 34, explains just how supportive the helpline team can be. She said: "For the first time, someone who didn’t know me seemed to understand what I am going through."
Danielle Malkin and sons Theo and Jenson all have the condition. Danielle was only told she had Charcot-Marie-Tooth disease following Theo's diagnosis in 2004.
MDUK Muscles Matter 2020 – Thursday 22 October round-up