Muscular Dystrophy UK’s Ambulance Action campaign has been created to ensure that individuals and families affected by muscle-wasting conditions receive the vital care and support they need in emergency situations.
To ensure our Ambulance Action campaign is effective we need to know your real life experiences of emergency care, so we have developed a short survey. The findings will be essential to help us drive forward this campaign.
So, if you or a family member have a muscle-wasting condition and have experience of needing emergency care please take the time to fill in this survey here.
Bobby Ancil, Head of Outreach, Commissioning and Professional Development at Muscular Dystrophy UK said:
It is so important that individuals and families with muscle-wasting conditions know that they will receive high quality care in an emergency. Ensuring that we have a real understanding about people’s experiences of emergency care is an essential part of this campaign’
More information on our Ambulance Action campaign is below.
Our work with ambulance services
Following our collaboration with the London Ambulance Service, we’re working with ambulance trusts, people living with neuromuscular conditions and specialist health teams across the UK to adopt flagging systems that alert paramedics and first responders that the person they are treating has an emergency care plan.
Most recently, new support has been made available in the West Midlands and Northern Ireland. The focus is on adding people to the system who are likely to need emergency care.
Flagging systems enable call handlers to identify which patients have emergency care plans. They are then able to inform the paramedics attending that call. Paramedics can then contact their colleagues and retrieve this information.
We are continuing to work in partnership with ambulance services across the UK to ensure every region has a flagging system to support care.
If you have a muscle-wasting condition, are likely to need emergency care and want to find out whether your emergency care plan can be added to your ambulance service’s flagging system, then please speak with your neuromuscular team of health professionals.
Muscular Dystrophy UK has worked in partnership with specialist health professionals to create 16 condition-specific alert cards. The cards allow people with muscle-wasting conditions and their families to easily inform paramedic teams of the vital and specific issues which affect their care.
Since the launch of the Duchenne muscular dystrophy alert card in late 2014 we have sent out over 12,000 cards to people living with muscle-wasting conditions and health professionals.
Vivek Gohil from Leicester (pictured above), a Muscular Dystrophy UK Trailblazer who has Duchenne muscular dystrophy, highlights the need for paramedics to have an awareness of the emergency care needs of people with neuromuscular conditions:
As an adult living with Duchenne, it’s vital for me to be responsible and prepared for any eventualities. So having an Alert Card to show the Ambulance Service is critical so carers or parents have some form of safety net during an emergency crisis.
Get in touch with David Stephenson at firstname.lastname@example.org or on 020 7803 4826 to order an alert card and/or find out more about our Ambulance Action campaign.