Yesterday the adult and family-friendly guide to the 2017 International Standards of Care for SMA was published. You can view the UK version on the Treat-NMD website.
The Standards of Care were agreed on by a committee of international healthcare and patient experts. They describe what assessments and interventions families and adults should expect to find in any neuromuscular
The guide includes information about:
- Genetics and diagnosis
- Physiotherapy and Rehabilitation
- Orthopaedic Management
- Nutrition, Growth and Bone Health
- Breathing (Respiratory and Pulmonary Care)
- Other Organs and Systems
- Emergency Care
- Administration of new treatments for SMA
- Ethics and Choices
It also signposts to other useful resources.
We hope that the guide will be a valuable resource to ensure that people living with SMA are able to access the best possible medical care.