Guide to SMA standards of care

Published Date
27/06/2019
Author
Clare Lucas
Category
Care & Support

Yesterday the adult and family-friendly guide to the 2017 International Standards of Care for SMA  was published. You can view the UK version on the Treat-NMD website.

The Standards of Care were agreed on by a committee of international healthcare and patient experts. They describe what assessments and interventions families and adults should expect to find in any neuromuscular
centre anywhere.

The guide includes information about:

  1. Genetics and diagnosis
  2. Physiotherapy and Rehabilitation
  3. Orthopaedic Management
  4. Nutrition, Growth and Bone Health
  5. Breathing (Respiratory and Pulmonary Care)
  6. Other Organs and Systems
  7. Medication
  8. Emergency Care
  9. Anaesthetics
  10. Administration of new treatments for SMA
  11. Ethics and Choices

It also signposts to other useful resources.

We hope that the guide will be a valuable resource to ensure that people living with SMA are able to access the best possible medical care.

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