This week Muscular Dystrophy UK’s Bridging the Gap project held and supported successful events in both Sheffield and Manchester to support health professionals involved in the care of people with muscle-wasting conditions and families that are affected by them.
On Tuesday over 40 health professionals attended an upskilling event in Sheffield, hearing from expert speakers on how to provide the best possible quality of healthcare for people with muscle-wasting conditions.
The event included presentations from consultant neurologists, specialist physiotherapists, neuromuscular care advisors, a cardiac specialist as well as Muscular Dystrophy UK.
The event also gave health professionals a chance to meet people affected by muscle-wasting conditions and hear their experiences of health care that they have received.
Laura Shane a paediatric physiotherapist said:
“Upskilling in this area is so crucial and it is important that we are kept up to date with the latest information for the management of these rare conditions. It is really beneficial to bring together a group of health professionals with varying experience, which allows us to learn from each other”
On Thursday we attended a transition day at the Royal Manchester Children’s Hospital along with 15 families affected by muscle-wasting conditions, who came to learn about the changes to the care young people will receive when moving from children’s to adult specialist neuromuscular services.
Families heard about the resources that Muscular Dystrophy UK have produced to ensure that knowledge of their condition is transferred to any health professional they come into contact with via our new line of alert cards and our new neuromuscular care plan.
Young people with muscle-wasting conditions and their parents who attended the transition day also had the chance to meet each other and discuss the most important aspects that they felt they needed support with. These issues ranged from support with accessing specialist healthcare such as physiotherapy to practical issues such as obtaining a new wheelchair.
Lloyd Tingley, Neuromuscular Outreach Officer said:
“It was great to be able to present at both of these well attended events, supporting both families affected by muscle-wasting conditions and health professionals. Events like these ensure that both of these groups are able to access important information relevant to them, helping people with muscle-wasting conditions receive a high quality level of care.”
In over two years the Bridging the Gap project has now supported 16 professional upskilling events and 19 family information events which in total have been attended by over 1,000 people.
To find out more information about the Bridging the Gap project get in touch with Lloyd Tingley at email@example.com or on 0800 652 6352.