The Highly Specialised Service for Rare Mitochondrial Disorders in London has created a database to register children and adults with mitochondrial disease who contract “Coronavirus Disease 2019” (COVID-19).
The reason for doing this is to understand how COVID-19 affects people with mitochondrial disease, and whether the response is different to people without mitochondrial disease. It is hoped that this knowledge will improve the treatment of COVID-19 in people with mitochondrial disease.
The study is aimed at anyone (children or adults) with strongly suspected or genetically confirmed mitochondrial disease with either suspected or confirmed COVID-19. Participants in the study will be contacted by the researchers to obtain further information concerning their diagnosis and COVID-19 experience.
The research team hopes that this study will help to understand how COVID-19 affects people with mitochondrial disease; to improve knowledge of the course and improve management of the infection in people with mitochondrial disease.
You can find out more about the study, including how to take part, on the International Mito Patients website.
Muscular Dystrophy UK is a member of International Mito Patients (IMP); a network of national patient organisations involved in mitochondrial disease. By joining forces, IMP represents a large group of patients, creating a stronger voice on an international level.
Read our guidance on Covid-19
If you have any research questions, please contact our Research Line on firstname.lastname@example.org