Our MDUK Muscles Matter 2020 seminars concluded on Thursday 22 October, virtually bringing together people living with muscle-wasting conditions from across the UK with seminars on Charcot-Marie-Tooth (CMT) and accessing services in the time of COVID-19.
Marking Charcot-Marie-Tooth awareness month (October), we were joined in our CMT seminar by Professor David Bennett and Professor Mary Reilly to talk about the latest CMT research. They talked about disease process in human tissue, induced pluripotent stem cells (iPSCs), gene-specific diagnosis and preparation for clinical trials.
We were joined by paediatric neurologist Dr Elizabeth Wraige, clinical nurse specialist, and physiotherapist Nick Emery to discuss potential treatments for CMT with our Director of Campaigns, Care and Support, Rob Burley. The panel also explored how people living with CMT can manage their condition more effectively, and talked about sensory loss and pain, the use of orthotics, and how taking a preventative approach can make patients more aware of their condition and progression of the diagnosis.
You can watch the full recording of the CMT seminar below or on our YouTube channel.
*Please note, a previously uploaded version did not have any sound; this has now been fixed.
The CMT seminar was followed by our ‘accessing services in the time of COVID-19 seminar. Our panel, Dr Ros Quinlivan, Dr Anne-Marie Childs, Care Advisor Sue Manning, physiotherapist Nick Emery, and Ed McIntosh from Incisive Health discussed how access to clinical services have been impacted by the coronavirus pandemic. They talked about the change from in-person appointments to video consultations, how the changes forced by the pandemic could be positive changes to the NHS, and how clinics are opening up again in a safe and COVID-secure way.
You can watch the recording of our ‘accessing services in the time of COVID-19’ seminar below or on our YouTube channel.
You can watch all our previous MDUK Muscles Matter 2020 seminars on our curated YouTube playlist.
If you have any feedback or ideas for future seminars, please email our Digital team.