Mitochondrial Disease Awareness Week takes place from 16 to 22 September. Muscular Dystrophy UK is here for anyone affected by a muscle-wasting condition such as mitochondrial disease, from the moment of diagnosis and beyond.
What is mitochondrial disease?
Some people with mitochondrial disease have muscle weakness, and they may be given the diagnosis of mitochondrial myopathy. Mitochondrial myopathy is an umbrella term for conditions caused by faulty mitochondria.
Mitochondrial myopathies are a group of conditions that particularly affect muscles, but which may also affect every other part of the body, including the brain and the eye. Symptoms can occur at any age, and their severity can vary between individuals – even within the same family.
How we’re here to help
We understand the everyday challenges of living with a muscle-wasting condition. We’re here to help with information and advice, together with emotional and practical support, a network of local groups and an online community. Find out more about the services we offer here.
How you can get involved
- Read about Jack Blackburn (pictured) who has mitochondrial disease and completed a month’s work experience placement as part of Trailblazers’ Moving Up scheme.
- Read about a research project testing a potential treatment for mitochondrial myopathy.
- Join in the conversation on Twitter by following the #MitochondrialAwarenessWeek hashtag.
- Share our infographic on social media to help us raise awareness.
- Read and download our mitochondrial factsheet.
Visit our mitochondrial myopathy page for up-to-date information and resources about the condition.