The biopharmaceutical company, Pharnext, is carrying out an observational study for people with Charcot-Marie Tooth disease (CMT) using a new digital app called CMT&Me.
The aim of the study is to collect data directly from people with CMT, who can describe what it is like to live with the condition. It is hoped that this information will improve our understanding of CMT and lead to better care. It could also help with the development of potential treatments.
Pharnext worked with the international CMT community and the digital health company, Vitaccess, to develop CMT&Me. The app is free to download to your smartphone (Android and iOS) and can be used in the comfort of your own home or on the go. You can fill out quality of life questionnaires, record your symptoms and access medical and practical information.
Your information will be securely stored in a central database and this will be anonymised before analysis. If you would like to take part in this study, please click here for further information on how to register.