New study investigating how Duchenne affects the brain

Published Date
Jenny Sharpe

Update June 2019: The study has opened a second round of recruitment. If you’re interested in taking part or finding out more, please email or, or phone 02079052151.

Sometimes people with Duchenne muscular dystrophy can have emotional and behavioural problems. Researchers at Great Ormond Street Hospital (GOSH) are carrying out a study to find out more about the emotion system of the brain in boys with Duchenne. They hope that this will lead to better ways of testing for brain problems in Duchenne.

The study is taking place at GOSH, London and is recruiting boys with Duchenne aged 7-12 years, as well as boys in this age range who do not have Duchenne and will be controls. Participants will have two visits to GOSH three months apart (one visit only for controls) lasting about two hours. The study visits will usually be on Wednesdays or Fridays, aiming to coincide where possible with clinic visits.

During study visits, the following tests will be carried out:

  • question and puzzle tests to help understand how participants’ brains work
  • sound and picture computer tests where participants’ skin and heart rate is checked

Travel expenses will be reimbursed and participants will receive a voucher and a ‘Brain Scientist’ certificate as a thank-you.

If you are interested in taking part, please email Andriani Papageorgiou ( or Dr Kate Maresh ( or phone 02079052151.

Further Information

View the study poster

Learn about our mental health matters programme

Read the latest Duchenne news

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