Sammy de Laszlo looks like any other 8 year old, happily playing with his favourite cars, or trying to chase his elder brother Thomas in the park. It’s in this situation however, that you notice that Sammy cannot keep up with his brother, this is because Sammy has Duchenne muscular dystrophy.
Sammy’s parents, Oliver and Tricia have been raising money and awareness for over three years to help fund research into treatments that will help not just Sammy, but all children living with a muscle-wasting condition. The family have recently moved from London to Hampshire, to get Sammy into a special needs school in the future, and have additional living space at home.
“Sammy is a happy, strong, brave boy who will be 9 in October. He Loves toy cars, cuddlies, Lego and spending time outside looking at and exploring nature. But he also has to deal with Duchenne muscular dystrophy with linked learning difficulties and Autism. This is a devastating condition and most children born with Duchenne will need to use a wheelchair by the age of 12 and as it affects every muscle in the body including the heart and lungs. With currently only Steroids as treatment for many of those affected sadly most will not live to see their 30th birthday. So they are living on borrowed time.
“Our goal as a family with a child with Duchenne muscular dystrophy has always been to raise awareness of this rare muscle wasting condition. We are passionate about helping to raise vital funds for medical research. Your support through this event is very important to us, as it will help children like Sammy and young adults to get the support and treatments they deserve.”
This year Bake a Difference returns running from the 9-13 October and the De Laszlo family are asking each and everyone of you to consider hosting your very own bake sale:
“With the all new Bake Off kicking off on the TV, now is the time to grab your aprons and put those baking skills to the test! Everyone loves baking and eating cakes! We launched Bake a Difference four years ago and it’s grown from strength to strength. Whether it’s cookies, cupcakes or your granny’s special recipe, we hope children and their families, schools and workplaces will have fun in the kitchen this October and help thousands of people living with muscle-wasting conditions. By whipping up a storm in the kitchen, you could help us to fund vital research and support. Together with your support we will be helping to change the lives of people like Sammy living with muscle-wasting conditions”
If you would like to sign up to host your Bake a Difference cake sale or for more information, please visit www.musculardystrophyuk.org/events/bake-a-difference/