Real-world data study in FSHD

Published Date
15/10/2019
Author
Louise Clarke
Category
Research
Orange box stating: Breaking news research

Facio Therapies has announced the completion of a ‘real-world data’ study monitoring the progression of FSHD and its impact on daily life. The participants were monitored over six weeks through the use of a smartwatch and smartphone app. The aim of the study was to determine whether measurements from these devices correlated with clinical assessments. We look forward to seeing the results, which will hopefully show whether this sort of digital technology is sensitive enough to be used in clinical trials.

For more information read this press release from Facio Therapies.

If you have any questions about this report or any other FSHD research, please contact the MDUK Research Line on 020 7803 4813 or email research@musculardystrophyuk.org.

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