With two months to go, we have taken the decision to postpone our Scottish Conference. This decision has been based on building works at the venue, which make it impossible for us to proceed as planned and has been taken in partnership with our Scottish Council. We are just as disappointed as you, but are looking forward to holding the event in Spring 2020, which some of you have previously suggested could be a better time of year to meet. We will provide full details of the new date and venue as soon as they are available, and we will be contacting everyone who has bought tickets and arranging full refunds.
Our next UK-wide Patient Information Day is taking place in York on 23rd November and is covering Spinal muscular atrophy (SMA), Facioscapulohumeral muscular dystrophy (FSHD) and Myotubular myopathy. We are holding the event in partnership with other patient groups, and we will be working with SMA UK to provide up to date information on the rollout of Spinraza; including in Scotland.