Seven new centres that support people with muscle-wasting conditions have been awarded Centres of Clinical Excellence status by Muscular Dystrophy UK, taking the total across the UK to 17.
The awards recognise excellence across a range of criteria, including the care received by patients, and help to drive up the standards of clinical support for people with muscle-wasting conditions.
Last year, Muscular Dystrophy UK’s Services Development Committee invited a panel of expert neuromuscular health professionals and patient representatives to develop the criteria for the awards, while patients gave their views at muscle groups and online. This has helped the expert panel determine which centres are delivering the very best care.
In addition to the 17 neuromuscular services recognised as Centres of Excellence, there are other muscle centres that provide very good quality care to their patients but narrowly missed out on some of the audit designation criteria. Muscular Dystrophy UK also runs a triennial Networks of Excellence awards process, which will be held again before the end of 2019.
The expert panel holds an appeals process which enables those that have not been awarded Centres of Clinical Excellence status to make their case to the Services Development Committee.
Rob Burley, Director of Campaigns, Care and Support at Muscular Dystrophy UK, said:
We would like to congratulate all centres who have been awarded Centres of Clinical Excellence. It is deserved recognition of the comprehensive service they provide for people with muscle-wasting conditions and the work they do in promoting best practice, ensuring patients have access to the best possible healthcare near where they live. Improved clinical care means faster access to treatments and potential cures.
As the leading charity improving standards in muscle centres, we want to make sure everyone living with a muscle-wasting condition gets excellent care. We will continue to work with all centres to ensure this ambition is realised.
What are Centres of Clinical Excellence?
The Centres of Clinical Excellence awards review began in 2012 and takes place every three years. It involves a rigorous assessment of services by experts, with a panel of health professionals and patient representatives developing the criteria for the awards.
Our Services Development Committee leads the review process. The committee, chaired by Baroness Thomas of Winchester, includes leading neuromuscular clinicians, patient representatives and a specialist NHS commissioner.
Who has been awarded Centres of Clinical Excellence status?
The following centres have been recognised:
1. Heartlands Hospital, University Hospitals Birmingham NHS Foundation Trust (Paediatric Centre for Clinical Excellence)
2. Bristol Royal Hospital for Children, University Hospitals Bristol NHS Foundation Trust (Paediatric Centre for Clinical Excellence)
3. North Bristol NHS Trust (Adult Centre for Clinical Excellence)
4. Evelina Children’s Hospital, Guy’s and St Thomas’ NHS Foundation Trust, London (Paediatric Centre for Clinical Excellence)
5. Royal Manchester Children’s Hospital, Manchester University NHS Foundation Trust (Paediatric Centre for Clinical Excellence)
6. Sheffield Children’s NHS Foundation Trust (Paediatric Centre for Clinical Excellence)
7. Sheffield Teaching Hospitals NHS Foundation Trust (Adult Centre for Clinical Excellence)
8. Wessex Neurological Centre, Southampton General Hospital, Southampton (Adult Centre for Clinical Excellence)
9. The Addenbrooke’s Neuromuscular Service, Cambridge (Adult and Paediatric Centre for Clinical Excellence)
10. Robert Jones and Agnes Hunt Orthopaedic NHS Trust, Oswestry (Adult and Paediatric Centre for Clinical Excellence)
11. Dubowitz Neuromuscular Centre, Great Ormond Street Hospital, London (Paediatric Centre for Clinical Excellence)
12. The National Hospital for Neurology and Neurosurgery, London (Adult Centre for Clinical Excellence)
13. The John Walton Muscular Dystrophy Research Centre, Newcastle (Adult and Paediatric Centre for Clinical Excellence)
14. John Radcliffe Hospital, Oxford (Adult and Paediatric Centre for Clinical Excellence)
15. The Walton Centre, Liverpool (Adult Centre for Clinical Excellence)
16. Leeds Children’s Hospital, Leeds Teaching Hospitals NHS Trust (Paediatric Centre for Clinical Excellence)
17. Alder Hey Children’s Hospital NHS Foundation Trust, Liverpool (Paediatric Centre for Clinical Excellence)
The Muscular Dystrophy UK Outreach, Commissioning and Professional Development team continues to work closely with neuromuscular clinical teams and regional neuromsucular networks across the country to secure increased support for families and individuals living with muscle-wasting conditions. Since 2017 we have helped secure more than £5.7 million of new NHS investment in neuromuscular services across the UK.
If you would like more information about the Centres of Excellence Awards please get in touch with David Stephenson at firstname.lastname@example.org or on 020 7803 4826.