SMA Awareness Day 2019

Published Date
27/09/2019
Author
Catherine Rowland
Category
Care & Support

Today, we’re joining SMA UK in marking SMA Awareness day 2019.  Muscular Dystrophy UK is here for anyone affected by a muscle-wasting condition such as spinal muscular atrophy (SMA) from the moment of diagnosis and beyond. Below you can find out more about SMA and how you can help raise awareness.

What is SMA?

Spinal muscular atrophy (SMA) is a rare genetic condition. It can affect crawling and walking, arm, hand, head and neck movement, breathing and swallowing. There are four types of SMA and about 100 children are born with this rare condition each year. There may be between 2,000 – 2,500 children and adults in the UK living with SMA.

How we’re here to help

We understand the everyday challenges of living with a condition such as SMA. We’re here to help with information and advice, together with emotional and practical support, a network of local groups and an online community. Find out more about the services we offer here.

How you can get involved

  • Read about Ellie Renton (pictured above with her brother William) who has SMA type 2 and the difference powerchair football has made to her life.
  • Read about a new research project which could lead to potential treatments that are safer and less invasive than Spinraza.
  • Join in the conversation on Twitter by following the #SMAAwareness hashtag.
  • Share our infographic on social media to help us raise awareness.
  • Find out how to obtain an alert card which will help you inform healthcare professionals of key issues relating to your condition in an emergency.
  • Read and download our SMA factsheets

Visit our spinal muscular atrophy (SMA) page for up-to-date information and resources about the condition

Keep in touch