New support days for families from South Asian backgrounds

Published Date
31/07/2018
Author
Alexa Follen
Category
Care & Support
Information for diverse communities

Muscular Dystrophy UK is organising new events for individuals and families from South Asian backgrounds. These support days follow the success of our Awaaz network, which was set up after people told us they would like to meet other families from South Asian backgrounds affected by muscle-wasting conditions who were living in their area.

We have now launched two upcoming events in both Slough and Birmingham. Details of these meetings can be found below:

Slough support group

Muscular Dystrophy UK is holding our first ever support and information day for families from South Asian backgrounds in Slough.

The event is taking place from 12pm – 2pm on Saturday 22nd September 2018 at The Curve, William Street, Slough, SL1 1XY.

The day will feature:

  • a presentations from a healthcare professional to make sure you get the care you need
  • information about the support available from Muscular Dystrophy UK
  • an opportunity for attendees to let us know what they want from future meetings
  • lunch, tea and coffee
  • games and activities for children

To attend the meeting get in touch with David Stephenson at d.stephenson@musculardystrophyuk.org or on 02078034826.

West Midlands Neuromuscular Sahara Group

Our West Midlands Sahara group was set up following an information and support day in February which saw over 20 people from South Asian backgrounds come together to plan support for this group of people in the West Midlands.

The next meeting is being held from 2pm – 4pm on Saturday 20th October 2018 at the Mac Centre, Cannon Hill Park, Queen’s Ride, Birmingham B12 9QH.

The event will feature:

  • a presentation from a healthcare professional to make sure you get the care you need
  • support from Muscular Dystrophy UK
  • snacks, tea and coffee
  • games and activities for children

Naima Ali-Khan is a student nurse and Muscular Dystrophy UK ambassador whose two teenage daughters have SEPN1-related myopathy. She is also one of the four women who are the driving force behind the West Midlands Sahara Group. Naima writes why people should get involved below:

Living with muscular dystrophy is fraught with challenges. Knowing where to start and where to get the right information and support is important in successfully managing these conditions.

I want to use my experience to help other families out there who are living with the overwhelming impact of muscular dystrophy. Meeting others with a shared experience gives you a powerful sense of community.

If you would like to attend or find out more about either of these upcoming events then please get in touch with David Stephenson at d.stephenson@musculardystrophyuk.org or on 020 7803 4826.

 

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