World Duchenne Awareness Day 2018

Published Date
07/09/2018
Author
Emma Smith-Bodie
Category
Care & Support
Mitch Coles family 2

Today is World Duchenne Awareness Day 2018! At Muscular Dystrophy UK, we are proud to support families affected by this condition.

Duchenne Muscular Dystrophy causes muscles to weaken and waste over time, leading to increasing and severe disability. The condition affects not only muscles used for movement, but also the heart and vital breathing muscles. It mainly affects boys, but girls can be manifesting carriers. There are around 2,500 boys and young men in the UK living with the condition.

You can help us raise awareness today in lots of different ways. These include sharing our research video and balloon infographic, and following our Twitter account as Vivek Gohil takes over between 1.30pm and 3.30pm. He will be discussing his experience of living with the condition, as well as assistive technology, accessible gaming, grants and care packages. Make today count, and join in!

 

How you can get involved in World Duchenne Awareness Day:

  • Read about Mitch Coles, who has Duchenne and has just welcomed his second child
  • Watch Professor Kay Davies discussing the 30 years of research she has devoted to the condition
  • Follow our Twitter account and #WDAD18 to join the conversation around the world
  • Learn about the latest research project which is part of our £2.3m investment in grants for Duchenne research
  • FInd out how to obtain an alert card so you can inform healthcare professionals of key issues relating to your condition in an emergency
  • Share our balloon gif
  • Read our factsheet on the condition

Find out more:

Visit our Duchenne muscular dystrophy page for up-to-date information and resources about the condition.

 

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